I’ve made the final decision. I will not be dressing up for Halloween this year. I’m just too sick. It isn’t possible.
This is, of course, something that I already knew but I didn’t want to accept it.
I’m hopeful that because now we know what we’re working with, symptoms will be under control by next year.
I’m hopeful that the hematologist will be able to give me an official medical diagnosis of MCAS.
I’m hopeful that this will mean that I will be taken at least somewhat more seriously.
I am hopeful but for now this really sucks. Anyone who knows me knows how much I love Halloween. You may or may not know that I wasn’t aloud to celebrate it as a child for “religious” reasons and that that makes it all the more important to me now.
*sigh*
Now to figure out how I’m going to manage taking my son trick or treating….
I need a wheelchair.
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